Daughters Charlene Steving, left, and JoAnn Young help Helen Gallagher last month. Young e-mails concerns to Gallagher’s doctor.
The Internet’s power to make something “go viral” has surpassed the phrase’s original meaning.
Sneeze once, you might pass a virus to the person next to you. Post something online, the entire world might get infected.
Take the H1N1 vaccine: Last Thursday morning, the search term “H1N1 vaccine dangers” hit Google’s top 10 searches.
A video of a cheerleader supposedly crippled after getting the flu vaccine received almost a million hits.
It’s driving doctors crazy, as they insist the vaccine is safe and anti-vaccine preachers are plain wrong.
But the H1N1 story is evidence of a broader trend: The public’s appetite for Internet health information has fundamentally altered the doctor-patient relationship.
Doctors are no longer perceived as the only authority on health information.
“People don’t have that kind of patriarchal relationship with their physicians anymore,” said Dr. Maxine Barish-Wreden, who heads Sutter’s integrative medicine team. “They come in, and they’re armed with some data already.”
Almost all U.S. physicians said in a survey that at least some patients bring to appointments health information they found online, according to the Manhattan Research Group, a company that researches health care trends.
Sometimes it means those precious few minutes with the doctor can be spent setting the patient on the right track.
“There’s such a fine line between somebody who’s well-informed and somebody who’s misinformed,” said Diane Chan, a pediatrician at Kaiser’s Roseville Medical Center. “Because then I have two jobs: One, to convince you you don’t have a disease that you think you do, and then to diagnose you with the right thing.”
Sixty-one percent of Americans look online for health information, the majority of whom say their last search had an impact on medical decisions, according to a 2009 survey from Washington, D.C.-based Pew Research Center. The research group dubbed them “e-patients.”
Evelyn Meletlidis of Roseville said she looks up health information online every day because she has an autistic 4-year-old. She belongs to Internet groups for parents of kids with autism. Members trade tips on everything from diets to vaccinations.
Her choice not to continue vaccinating her son was a decision made after extensive research online and offline, she said, and one not welcomed by doctors.
“I’ve been literally kicked out of offices because I won’t vaccinate my child,” she said.
Despite all the online information, Pew researchers also found the Internet hasn’t replaced doctors.
“People turn first to their doctor, then to Dr. Mom, and third to Dr. Google,” said Suzanne Fox, one of the Pew study authors.
Roughly two-thirds of doctors think online health research is a good thing, according to the Manhattan Research Group.
When harnessed in the correct way, doctors say, the Internet makes the patient a partner, not a passive bystander. If a patient already has researched a specific condition, it means a physician can bypass the basics and get right down to real questions.
“I’ve heard anecdotally that specialists who care for people with chronic diseases are more welcoming of e-patients,” Fox said. “This patient is hitting the ground running and therefore the doctor can jump to the next level.”
Some providers have tapped into this thirst for knowledge with their own online information channels. Patients at Kaiser Permanente can log onto an interactive Web site and find information and videos on topics such as how to prepare for a major surgery.
Other doctors said the Internet is a good tool for engaging patients.
Dr. Kristopher Kordana said e-mail has made his internal medicine practice more patient-centered, as counter-intuitive as that sounds.
Kordana, who works at Kaiser South Sacramento Medical Center, said many patients are elderly or have persistent conditions. In the past, when they wanted professional advice, they would have to call the advice nurse. The message would have to be delivered to Kordana, and he would call back. Inevitably, there was a lot of phone tag.
Now the patient can just e-mail him directly, Kordana said. If he’s at his computer, he can respond in under a minute.
If the matter is not urgent, he’ll ask a patient to come in. But many health issues don’t need an appointment, such as sending out a quick medical reminder.
“It’s really freed up my time so I actually have more face-to-face with patients,” Kordana said. “And when I do see patients, our visit is much more efficient.”
One of his patients is Helen Gallagher, whose daughter JoAnn Young trades e-mails with Kordana. Gallagher is 94 years old and doesn’t e-mail, but she knows how to contact Kordana, Young said.
“My mother always says to us, ‘Did you e-mail the doctor and tell him?’ ” Young said.